A gofundme appeal is ongoing for 22 year old undergraduate Adebimpe Shenbote to undergo a hip replacement surgery. Shenbote actively participated in the recent UK-based TunMicro Sickle Cell Foundation’s free genotype/SCD awareness event at Makoko, Lagos. Addressing a crowd of children and adults at Makoko, Shenbote told of her struggles with SCD, of undergoing eight …

‘My Parents Were Victims of Wrong Genotype Result’Read More »

By Ayoola Olajide, reporting from Accra, Ghana It may sound stigmatising, but direct experience with SCD validates the avoidance of ‘S’ in others! Patricia Odwui, 58, has a simple solution to the problem of reducing or wiping out a disease she lives with and dreads like hell. ‘Don’t marry S if you have S,’ she …

None of my Children Will Marry Anyone With an ‘S’!Read More »

A Sickle Cell Patient, Miss Onyinye Ezemaduka, has died while being detained at a hospital in Southeast Nigeria for her inability to pay her medical bills. The sad incident occurred at St Charles Borromeo Hospital Onitsha, Enugu State, where Ezemaduka was prevented from going home unless she fully paid for debts incurred when she was …

Tragedy Of A Poorly-Managed Healthcare System: SCD Patient Detained In Hospital For Inability To Pay DiesRead More »