QUESTION: I am 35 and joyously single. I live with sickle cell anaemia. I am a virgin and have absolutely no interest in women – or in sex. Is my lack of sexual desire something to do with sickle cell or is it just me? Onuigbo Ngozi ANSWER: You need to see a multidisciplinary group …

Help & Advice: I have no interest whatsoever in the opposite sex!Read More »

‘The tide is turning against sickle cell disease. With two new weapons approved for #sicklecellwarriors in a week and 3 in 2 years, after a 20-year wait, a Golden Age of #SickleCell treatment has officially arrived!’ – Alexander Glaros, Paediatric Haematology-Oncology Fellow, Children’s Hospital of Michigan The U.S. Food and Drug Administration has approved a …

First Drug To Tackle SCD Cause, Not Symptoms, EmergesRead More »

Simof Sickle Cell Initiative is committed to a pain-free generation within the shortest possible time … In Ibadan, ‘the broken china on seven hills’, according to Chinua Achebe, and one of Nigeria’s three top megacities, home to the first TV station in Africa, the then tallest building in Nigeria and the country’s premier university, among …

SIMOF Sickle Cell Initiative: Long Journey To Pain-free GenerationRead More »

High School Students Win Prizes in Sickle Cell Essay EMC3 Nigeria in collaboration with Thorburn Investments in aid of the Richard Coker Foundation and supported by First City Monument Bank (FCMB) presents ‘Song Queen: A Pidgin Opera’ the world’s first pidgin English opera, by Helen Epega, aka The Venus Bushfires. On November 8 2019, students …

Song Queen – World’s First Pidgin English Opera Dazzles Audiences in LagosRead More »

The West African Country of Ghana, where roughly 15000 babies are born with sickle cell disorder every year has entered into a partnership with the pharmaceutical giant, Novartis, to provide free hydroxyurea treatment for citizens with the inherited blood disease. READ MORE ‘We recommend hydroxyurea to every child and adult with SCD, irrespective of degree …

West African Country Approves Free Hydroxyurea For Citizens With Sickle CellRead More »

Lately, André Marcel Harris, 30 has been participating in Town Hall meetings for men folk with SCD. ‘It has been refreshing to note that people are genuinely interested in the unique challenges that impact men with SCD,’ comments Andre. André was found with sickle cell anaemia in utero, a diagnosis which prompted his parents to …

Booboo: American Nurse Asks Patient – ‘How Long Have You Had Sickle Cell Anaemia?!’Read More »

I took hydroxyurea throughout my pregnancy and exclusively breastfed my baby for six months while still on the medication Medical wisdom suggests that a user must discontinue the use of hydroxyurea (HU) months before trying to conceive or get a woman pregnant. Maldivean Aishat Shifneez Shakir, 36, obediently gave up a medication she had taken …

Hydroxyurea In Pregnancy – A Startling TestimonyRead More »

Meet Tosin Ola-Weissmann, RN/BSN, the Warrior Who Coined The Term That Replaced the obnoxious word, SICKLER. Parents told she would not live past childhood, now approaching 40! School principal asked parents to stop wasting money on her education, now she is a Registered Nurse, Bachelor of Nursing and set to earn two postgraduate degrees! Her …

Tosin Ola-Weissmann – the quintessential warriorRead More »

For the time in its 47-year history, the Sickle Cell Disease Association of America (SCDAA) has reached out to a media organization in Africa for the purpose of accentuating sickle cell awareness globally. In recent times, the SCDAA has partnered with Emerge Woman Magazine and pharmaceutical giant, Pfizer for the same purpose. The collaboration with …

SCDAA PARTNERS AFRICAN SICKLE CELL NEWS & WORLD REPORT ON GLOBAL SICKLE CELL AWARENESSRead More »