A gofundme appeal is ongoing for 22 year old undergraduate Adebimpe Shenbote to undergo a hip replacement surgery. Shenbote actively participated in the recent UK-based TunMicro Sickle Cell Foundation’s free genotype/SCD awareness event at Makoko, Lagos. Addressing a crowd of children and adults at Makoko, Shenbote told of her struggles with SCD, of undergoing eight …

‘My Parents Were Victims of Wrong Genotype Result’Read More »

NIGERIA ATTEMPTS TO WIPE OUT SCD In 1995, under the administration of Colonel ikechinyere Nwosu, the Oyo State Government issued an edict PROSCRIBING the marriage of sickle cell carriers; In 2011, Senator (Dr.) Ifeanyi Arthur Okowa and Senator Nnenadi Usman presented a Bill for the Control of SCD in Nigeria – sections of the Bill …

Anambra Sickle Cell Law Stirs up Hornets’ NestRead More »

By Ayoola Olajide, reporting from Accra, Ghana It may sound stigmatising, but direct experience with SCD validates the avoidance of ‘S’ in others! Patricia Odwui, 58, has a simple solution to the problem of reducing or wiping out a disease she lives with and dreads like hell. ‘Don’t marry S if you have S,’ she …

None of my Children Will Marry Anyone With an ‘S’!Read More »

Warrior University is an online, curriculum-based educational platform, powered by the patients and caregivers of the Sickle Cell Consortium. All classes, presentations and workshops are classified into four warrior university pillars: Disease Education (ex. The Expert Patient Series) Community-Based Organization/Certified Community Advocate Training & Best Practices Research, Legislation & Policy Warrior/Caregiver Life Skills ABOUT THE …

Welcome to WARRIOR UNIVERSITYRead More »

The Solutions to Empower Patients (STEP) Program™ continues to help nonprofit organizations deliver new solutions to address unmet patient needs This year’s focus is on addressing some of the most pressing issues in the sickle cell disease (SCD) community Novartis has announced that five nonprofit organizations will receive a total of nearly $250,000 in funding …

Novartis Awards $250k grant to support SCD initiativesRead More »

2019 Theme: A call for universal access to quality thalassaemia healthcare services On May 8, 2019, the global thalassaemia community and the Thalassaemia International Federation (TIF) comes together to celebrate the International Thalassaemia Day. The International Thalassaemia Day is an annual landmark devoted to the strengthening of the lifelong and difficult struggle against thalassaemia, and …

Global Thalassaemia Community, TIF Mark International Thalassaemia Day 2019:Read More »