Author: sickle cell news

Sickle Cell Disease Association of America launches clinical trial finder

New website provides centralized place for patients to find and connect to clinical trials The Sickle Cell Disease Association of America launched a sickle cell disease clinical trial finder, a centralized, simple-to-navigate website to help people with sickle cell disease, their families and caregivers find clinical trials. Clinical trials help pharmaceutical companies collect data about…

SCDAA Celebrates National Sickle Cell Awareness Month

Conferences, advocacy, blood donations and other events held throughout September HANOVER, Md.—The Sickle Cell Disease Association of America will participate in National Sickle Cell Awareness Month in September by holding a series of events and supporting the events of member organizations. National Sickle Cell Awareness Month was designated by Congress to focus attention on the…

Gail Sickle Initiative, others, battle crisis of Ignorance

STOP THE SICKLE CYCLE – THE IMPERATIVE OF GENOTYPE AWARENESS By Oluwafemi Ajayi, Founder/CEO, Gail Sickle Initiative GSI As Nigeria tops the list of SCD statistics worldwide, it gives the country a lot of responsibilities in this regard, especially in the area of awareness which is quite a challenge. The widespread ignorance of genotype and…

SCDAA announces new teen ambassador

HANOVER, Md.—Sickle Cell Disease Association of America (SCDAA) named 14-year-old Ayana Lee Johnson the 2021-2023 SCDAA National Teen Ambassador. She was selected through a nationwide competition formerly known as the Poster Child Contest that started in 1976. Her reign will begin with an official coronation during SCDAA’s Annual National Convention Oct. 12-16. In her role…

Ahoy, Seadogs! Why Pyrates Confraternity Identifies With Sickle Cell Awareness

An international organization, the National Association of Seadogs (Pyrates Confraternity) has a dedicated medical arm which provides free medical services to needy populations around the world. Sickle Cell falls under this spectrum. On several occasions in Lagos, Port Harcourt, Abuja and other Nigerian cities, NAS has conducted or collaborated in SCD awareness campaigns and walks.…

Sickle Cell Disease Awareness Day and Thalassemia Awareness Day Bill 255 Becomes Law

“I am so thankful that I had the opportunity to meet with Lanre – Founder of the Sickle Cell Awareness Group of Ontario – when I was first elected, to learn more about how much of an impact this disease causes for so many people in our communities,” said Khanjin.