Author: sickle cell news

Jobelyn to the rescue: Family with sickle cell warrior adopts HIV Positive Child

The West African phytoceutical known as sorghum bicolor (under the proprietary name of Jobelyn) was recently registered in the drug dictionary of the US National Cancer Institute (NCI). It is described as being rich in Polyphenols and phenolic acids with the potential for antioxidant, anti-inflammatory, immunomodulating and chemopreventive capabilities. This testimonial by a Nigerian medical…

Dr. Rao Lee: The Sickle Cell Warrior Who Never Gives Up

Raolat Akinlade (popularly known as Dr. Rao Lee), 54 has two masters degrees in Health Promotion and  Educational Technology/Instruction and a doctorate in Educational Leadership and Management. Dr. Rao Lee’s life experiences epitomize the ideals of NEVER GIVE UP DAY, celebrated August 18 of every year. Despite the ups and downs of SCD, despite many…

‘I am not a SICKLE CELL WARRIOR – I am a SICKLER!’ – (Wale Fanu passes away at 72)

A star has fallen in Nigeria as the sun sets on ace Nollywood film-maker, Adewale Fanu, seven weeks after his 72nd birthday. He always remarked that  both his parents passed away just after their 70th birthdays. Wale Fanu’s passing underlines a irony of a fact of life: that no branch – no leaf, no matter…

Nigerian SCD Warrior/Advocate Passes Away

Her last post was on June 3rd 2022, when health-conscious sexagenarian Ms Adebola Ayoola Odutola-Benjamin sought to encourage members of her support group to put SCD underfoot by eating principally from nature. Two days later, a pious Christian, she ‘joined the Saints Triumphant’. Born November 18 1958, Ms Benjamin was widely travelled. As Admin Secretary…

Sickle Cell Disease Association of America launches clinical trial finder

New website provides centralized place for patients to find and connect to clinical trials The Sickle Cell Disease Association of America launched a sickle cell disease clinical trial finder, a centralized, simple-to-navigate website to help people with sickle cell disease, their families and caregivers find clinical trials. Clinical trials help pharmaceutical companies collect data about…

SCDAA Celebrates National Sickle Cell Awareness Month

Conferences, advocacy, blood donations and other events held throughout September HANOVER, Md.—The Sickle Cell Disease Association of America will participate in National Sickle Cell Awareness Month in September by holding a series of events and supporting the events of member organizations. National Sickle Cell Awareness Month was designated by Congress to focus attention on the…

Gail Sickle Initiative, others, battle crisis of Ignorance

STOP THE SICKLE CYCLE – THE IMPERATIVE OF GENOTYPE AWARENESS By Oluwafemi Ajayi, Founder/CEO, Gail Sickle Initiative GSI As Nigeria tops the list of SCD statistics worldwide, it gives the country a lot of responsibilities in this regard, especially in the area of awareness which is quite a challenge. The widespread ignorance of genotype and…

SCDAA announces new teen ambassador

HANOVER, Md.—Sickle Cell Disease Association of America (SCDAA) named 14-year-old Ayana Lee Johnson the 2021-2023 SCDAA National Teen Ambassador. She was selected through a nationwide competition formerly known as the Poster Child Contest that started in 1976. Her reign will begin with an official coronation during SCDAA’s Annual National Convention Oct. 12-16. In her role…