Tag: sickle cell disease

SCDAA Celebrates National Sickle Cell Awareness Month

Conferences, advocacy, blood donations and other events held throughout September HANOVER, Md.—The Sickle Cell Disease Association of America will participate in National Sickle Cell Awareness Month in September by holding a series of events and supporting the events of member organizations. National Sickle Cell Awareness Month was designated by Congress to focus attention on the…

SCDAA announces new teen ambassador

HANOVER, Md.—Sickle Cell Disease Association of America (SCDAA) named 14-year-old Ayana Lee Johnson the 2021-2023 SCDAA National Teen Ambassador. She was selected through a nationwide competition formerly known as the Poster Child Contest that started in 1976. Her reign will begin with an official coronation during SCDAA’s Annual National Convention Oct. 12-16. In her role…

From Paralysis To PhD – the story of a sickle cell warrior, as told by his mum

Your Child Has Only Three Days To Live, doctors at ABUTH told Mrs. Fagbamigbe A Mum’s Testimonial on the administration of a supplement she’d never heard of, on a very desperate occasion …By Ayoola Olajide, General Editor, Sickle Cell News The doctors gave out no hope about my son ever recovering from his paralysis –…

If you have faith, strong faith, you can have sickle cell and marry a sickle cell carrier!

The 71-year-old sickle cell warrior has never been transfused – plans to live 100 years or more AN INTERVIEW WITH SICKLE CELL WARRIOR EBUN OLUMIDE AKINNINBOSUN EKUNWE, MBBS, MD. MPH At 71, has never received blood transfusion Worst crisis happened when outside Nigeria Local foods such as garri (cassava) can help ease out SCD Feels…