As related to Ayoola Olajide, Sickle Cell News Editor, by Nkeirukanma Umeakuekwe, Port Harcourt, Nigeria Nkeiru took her first capsule of Jobelyn early February 2023. She promptly noticed within a few days that she could sit for more time without pain. A few more days, she timed herself and noticed she could sit up five…
HANOVER, Md.—The Sickle Cell Disease Association of America, a national nonprofit membership organization that advocates for people affected by sickle cell, formed the Sickle Cell Disease C.A.R.E.S. Consortium, an initiative of pharmaceutical companies united to promote clinical trial participation and education. “We have an opportunity and a responsibility to change the perception of clinical trials…
Conferences, advocacy, blood donations and other events held throughout September HANOVER, Md.—The Sickle Cell Disease Association of America will participate in National Sickle Cell Awareness Month in September by holding a series of events and supporting the events of member organizations. National Sickle Cell Awareness Month was designated by Congress to focus attention on the…
HANOVER, Md.—Sickle Cell Disease Association of America (SCDAA) named 14-year-old Ayana Lee Johnson the 2021-2023 SCDAA National Teen Ambassador. She was selected through a nationwide competition formerly known as the Poster Child Contest that started in 1976. Her reign will begin with an official coronation during SCDAA’s Annual National Convention Oct. 12-16. In her role…
A 69-year old man has died after a 3-hour erection known as priapism READ MORE. Priapism is an unwarranted, unwanted, unnecessary and painful erection of the penis. It is a known complication of sickle cell disorder in which blood is unable to flow in or out of the penis due to sickling. It can affect…
Your Child Has Only Three Days To Live, doctors at ABUTH told Mrs. Fagbamigbe A Mum’s Testimonial on the administration of a supplement she’d never heard of, on a very desperate occasion …By Ayoola Olajide, General Editor, Sickle Cell News The doctors gave out no hope about my son ever recovering from his paralysis –…
The 71-year-old sickle cell warrior has never been transfused – plans to live 100 years or more AN INTERVIEW WITH SICKLE CELL WARRIOR EBUN OLUMIDE AKINNINBOSUN EKUNWE, MBBS, MD. MPH At 71, has never received blood transfusion Worst crisis happened when outside Nigeria Local foods such as garri (cassava) can help ease out SCD Feels…
