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Covid-19: Time for A Sickle Cell Marshall Plan
By Ssebandeke Ashiraf Akiror Kevina was a seven month old with sickle cell disease from Odokurun village in Amuria District. She suffered anemia, one of the challenges caused by sickle cell disease during the Covid-19 lockdown and her parents couldn’t transport her to the hospital for blood transfusion. By the time the ban on public…
World Celebrates Sickle Cell Day Under Shadow Of Coronavirus
Take Your Pick Of Where You Celebrate (Online) … AND PLEASE wear RED on June 19, 2020! INDIA: LIVE WEBINAR – LIFE AFTER BONE MARROW TRANSPLANT. JUNE 22, 2020. NIGERIA 5PM, ZAMBIA 6PM, UGANDA 7PM, INDIA 9.30PM REGISTER Sickle Cell Support Society of Nigeria (in collaboration with the Nigeria Society for Blood Transfusion and Blood…
SICKLE CELL, THE OVERLOOKED PANDEMIC
Text of Press Release by Dabma Sickle Cell Foundation, Lagos, Nigeria Having been denied the united objective of imprinting sickle cell disorder awareness in the minds of pedestrians, motorists and the general public, with our loud music blaring on the road, our colourful outfits with leaflets and flyers in our hands showing what sickle cell…
A Wedding Is Announced!
Wedding bells are ringing for one of Nigeria’s most dedicated SCD advocates, Samira Haruna Sanusi. At 32, Samira is getting married to Harith Sidi Ali in a private wedding fatiha on Saturday, June 13. The restrictions brought about by the new global realities of a pandemic will, of course, be strictly observed, but certainly not…
Path Of Courage: raising a child with sickle cell disorder
‘Get involved. It is important that we get involved as a community and advocate for ourselves. Advocacy is about speaking up when needs are not met. Who can determine your needs better than yourself?
– Biba Tinga
THE TRIALS OF BROTHER ‘WALE
The Adewales need reprieve from the effects of having multiple children with sickle cell anaemia… Many families have their hands full rearing just one sickle cell warrior. The financial drain apart, the world knows not the psycho-physical toll of the sickle cell journey on caregivers. Of clergyman Olukayode Adewale’s seven children with his wife Beatrice,…
Coronavirus: 172 With Sickle Cell Affected Worldwide
The SECURE-SCD Registry has reported that as of May 15, 2020, 172 persons with sickle cell have been reported as having caught the Coronavirus. 14 fatalities have been recorded. JOIN SICKLE CELL NEWS ON FACEBOOK BREAKDOWN SCD Type: SS (71.35%), SC (19.88%), SBeta zero Thal (4.68%). Sbeta Thal (4.09%) of the total affected. Age: The…
Hydroxyurea – free special edition
JOIN OUR FACEBOOK GROUP AND OBTAIN ACCESS TO THE LATEST EDITIONS OF SICKLE CELL NEWS OR PURCHASE SINGLE COPIES AT https://www.scdjournal.com/editions Need a good book to read during this lockdown? Look no further than MENACE IN MY BLOOD – MY AFFLICTION WITH SICKLE CELL ANAEMIA ADVERTISE YOUR SCD HEALTH PRODUCTS AND SERVICES TO A GLOBAL…
World Celebrates International Thalassaemia Day Under Shadow Of Pandemic
The theme for the International Thalassaemia Day 2020 is ‘The dawning of a new era for thalassaemia: Time for a global effort to make novel therapies accessible and affordable to patients’. The International Thalassaemia Day, commemorated annually on the 8th of May, will be celebrated by the Thalassaemia International Federation (TIF) along with the global…