Category: Public

Covid-19: Time for A Sickle Cell Marshall Plan

By Ssebandeke Ashiraf Akiror Kevina was a seven month old with sickle cell disease from Odokurun village in Amuria District. She suffered anemia, one of the challenges caused by sickle cell disease during the Covid-19 lockdown and her parents couldn’t transport her to the hospital for blood transfusion.  By the time the ban on public…

A Wedding Is Announced!

Wedding bells are ringing for one of Nigeria’s most dedicated SCD advocates, Samira Haruna Sanusi. At 32, Samira is getting married to Harith Sidi Ali in a private wedding fatiha on Saturday, June 13. The restrictions brought about by the new global realities of a pandemic will, of course, be strictly observed, but certainly not…

THE TRIALS OF BROTHER ‘WALE

The Adewales need reprieve from the effects of having multiple children with sickle cell anaemia… Many families have their hands full rearing just one sickle cell warrior. The financial drain apart, the world knows not the psycho-physical toll of the sickle cell journey on caregivers. Of clergyman Olukayode Adewale’s seven children with his wife Beatrice,…

World Celebrates International Thalassaemia Day Under Shadow Of Pandemic

The theme for the International Thalassaemia Day 2020 is ‘The dawning of a new era for thalassaemia: Time for a global effort to make novel therapies accessible and affordable to patients’. The International Thalassaemia Day, commemorated annually on the 8th of May, will be celebrated by the Thalassaemia International Federation (TIF) along with the global…