Lately, André Marcel Harris, 30 has been participating in Town Hall meetings for men folk with SCD. ‘It has been refreshing to note that people are genuinely interested in the unique challenges that impact men with SCD,’ comments Andre. André was found with sickle cell anaemia in utero, a diagnosis which prompted his parents to …
Booboo: American Nurse Asks Patient – ‘How Long Have You Had Sickle Cell Anaemia?!’Read More »
I took hydroxyurea throughout my pregnancy and exclusively breastfed my baby for six months while still on the medication Medical wisdom suggests that a user must discontinue the use of hydroxyurea (HU) months before trying to conceive or get a woman pregnant. Maldivean Aishat Shifneez Shakir, 36, obediently gave up a medication she had taken …
Meet Tosin Ola-Weissmann, RN/BSN, the Warrior Who Coined The Term That Replaced the obnoxious word, SICKLER. Parents told she would not live past childhood, now approaching 40! School principal asked parents to stop wasting money on her education, now she is a Registered Nurse, Bachelor of Nursing and set to earn two postgraduate degrees! Her …
For the time in its 47-year history, the Sickle Cell Disease Association of America (SCDAA) has reached out to a media organization in Africa for the purpose of accentuating sickle cell awareness globally. In recent times, the SCDAA has partnered with Emerge Woman Magazine and pharmaceutical giant, Pfizer for the same purpose. The collaboration with …
SCDAA PARTNERS AFRICAN SICKLE CELL NEWS & WORLD REPORT ON GLOBAL SICKLE CELL AWARENESSRead More »
Anne Welsh is an author, entrepreneur and philanthropist. A well-known British Sickle Cell Advocate, she was born in Nigeria and emigrated to the United Kingdom when she was very young. She was diagnosed with sickle cell anaemia at the age of four, and, after returning to live in her homeland while still a child, faced …
NIGERIA ATTEMPTS TO WIPE OUT SCD In 1995, under the administration of Colonel ikechinyere Nwosu, the Oyo State Government issued an edict PROSCRIBING the marriage of sickle cell carriers; In 2011, Senator (Dr.) Ifeanyi Arthur Okowa and Senator Nnenadi Usman presented a Bill for the Control of SCD in Nigeria – sections of the Bill …
Warrior University is an online, curriculum-based educational platform, powered by the patients and caregivers of the Sickle Cell Consortium. All classes, presentations and workshops are classified into four warrior university pillars: Disease Education (ex. The Expert Patient Series) Community-Based Organization/Certified Community Advocate Training & Best Practices Research, Legislation & Policy Warrior/Caregiver Life Skills ABOUT THE …
The Solutions to Empower Patients (STEP) Program™ continues to help nonprofit organizations deliver new solutions to address unmet patient needs This year’s focus is on addressing some of the most pressing issues in the sickle cell disease (SCD) community Novartis has announced that five nonprofit organizations will receive a total of nearly $250,000 in funding …
Novartis Awards $250k grant to support SCD initiativesRead More »
2019 Theme: A call for universal access to quality thalassaemia healthcare services On May 8, 2019, the global thalassaemia community and the Thalassaemia International Federation (TIF) comes together to celebrate the International Thalassaemia Day. The International Thalassaemia Day is an annual landmark devoted to the strengthening of the lifelong and difficult struggle against thalassaemia, and …
Global Thalassaemia Community, TIF Mark International Thalassaemia Day 2019:Read More »
