HANOVER, Md.—The Sickle Cell Disease Association of America will participate in National Sickle Cell Awareness Month in September by holding a series of events and supporting the events of its more than 50 member organizations. National Sickle Cell Awareness Month was designated by Congress to focus attention on the need for research and treatment of…
Found with sickle cell anaemia at the age of two (Massey Street Children’s Hospital, Lagos Island) I remember having my first blood transfusion at the age of six. This was at the then Baptist Hospital Ogbomoso (now Bowen University Teaching Hospital). At that age and by the time I clocked 10, a gloomy interpretation of…
The West African phytoceutical known as sorghum bicolor (under the proprietary name of Jobelyn) was recently registered in the drug dictionary of the US National Cancer Institute (NCI). It is described as being rich in Polyphenols and phenolic acids with the potential for antioxidant, anti-inflammatory, immunomodulating and chemopreventive capabilities. This testimonial by a Nigerian medical…
Raolat Akinlade (popularly known as Dr. Rao Lee), 54 has two masters degrees in Health Promotion and Educational Technology/Instruction and a doctorate in Educational Leadership and Management. Dr. Rao Lee’s life experiences epitomize the ideals of NEVER GIVE UP DAY, celebrated August 18 of every year. Despite the ups and downs of SCD, despite many…
A star has fallen in Nigeria as the sun sets on ace Nollywood film-maker, Adewale Fanu, seven weeks after his 72nd birthday. He always remarked that both his parents passed away just after their 70th birthdays. Wale Fanu’s passing underlines a irony of a fact of life: that no branch – no leaf, no matter…
Her last post was on June 3rd 2022, when health-conscious sexagenarian Ms Adebola Ayoola Odutola-Benjamin sought to encourage members of her support group to put SCD underfoot by eating principally from nature. Two days later, a pious Christian, she ‘joined the Saints Triumphant’. Born November 18 1958, Ms Benjamin was widely travelled. As Admin Secretary…
SCDAA Mourns Hertz Nazaire (1973-2021) ‘It is with heavy hearts that we share the passing of Hertz Nazaire who passed away October 29 2021 at the age of 48. Hertz was a renowned artist and author who used his painting skills to raise awareness for sickle cell disease. He was also well-known for his SCD…
New website provides centralized place for patients to find and connect to clinical trials The Sickle Cell Disease Association of America launched a sickle cell disease clinical trial finder, a centralized, simple-to-navigate website to help people with sickle cell disease, their families and caregivers find clinical trials. Clinical trials help pharmaceutical companies collect data about…
Conferences, advocacy, blood donations and other events held throughout September HANOVER, Md.—The Sickle Cell Disease Association of America will participate in National Sickle Cell Awareness Month in September by holding a series of events and supporting the events of member organizations. National Sickle Cell Awareness Month was designated by Congress to focus attention on the…
STOP THE SICKLE CYCLE – THE IMPERATIVE OF GENOTYPE AWARENESS By Oluwafemi Ajayi, Founder/CEO, Gail Sickle Initiative GSI As Nigeria tops the list of SCD statistics worldwide, it gives the country a lot of responsibilities in this regard, especially in the area of awareness which is quite a challenge. The widespread ignorance of genotype and…
