The Global Action Network For Sickle Cell and Other Inherited Blood Diseases (GANSID) holds its inaugural congress virtually from October 20-21, 2023. With the theme, There’s Power In the Collective, the gathering brings together stakeholders in the Hereditary Blood Disorders (HBDs) Community to identify opportunities for collective actions to improve outcomes for people impacted by inherited blood disorders and enable cross-disease information exchange and best-practices sharing.
GANSID encourages the formation and development of national and regional Inherited blood disorder organizations throughout the world, and intends to assist and motivate such organizations through disease-specific and cross-disease exchange of skills and knowledge.
Speakers at the inaugural GANSID meeting are drawn from around the world, and include Dr. Mary Akua Ampomah, a clinical psychologist and former President/CEO of the Global Alliance of Sickle Cell Disease Organizations (GASCDO); Dr. Laure Joseph, a haematologist at AP-HP Necker Hospital, Paris, France with interest in bone marrow transplantation and gene therapy clinical trials; and Ekawat Suwantaroj, President, Thai Hemophilia Patient Club, Committee member of the National Hemophilia Foundation of Thailand and lay member, World Federation of Hemophilia (WFH).
Others from the roll call of distinguished speakers include Dr. Alayo Sopekan, FMH, Nigeria, Professor Adlette Inati, Professor of Clinical Medicine at the Lebanese-American University School of Medicine, Cesar Garrido, President, World Hemophilia Foundation, Prof. JM. Dangou, Health Diplomat and Acting WHO Representative to the Republic of Zimbabwe; and Vinita Srivastava, a Health and Social care expert from India.
The co-chairs for the 2023 Congress are GANSID CEO, Mrs. Lanre Tunji-Ajayi, MSM, and Professor Adekunle Adekile MD, PhD, member of GANSID’s Scientific Working Committee.
Stakeholders from low and medium income regions of the globe with HBDs stand to benefit from membership as well as participation in the GANSID Congress: they get to interact with similar organizations and experts from advanced milieus. Through data-driven advocacy, collaboration, and capacity building, GANSID empowers member organizations and advances cross-disease initiatives to improve outcomes for people living with sickle cell & other inherited blood disorders.
The historic Congress is sponsored by Agios, Roche, Novo Nordisk, Vertex and Taskop Global Consulting.
To learn more about the GANSID Congress, visit https://inheritedblooddisorders.world/about-the-congress
Follow GANSID @Iblooddisorders