If during the ongoing COVID-19 lockdown and restrictions you did not receive palliative goodies from an organization known as Sickle Cell Aid Foundation (SCAF), you probably don’t mix with your fellow Warriors! In this interview SCAF President, Elmer Aluge, states why the organization has been playing the Good Samaritan in a country where practically every…
In 2005, when Moses Kayongo got married, genotype was not an issue simply because it was considered unimportant as far as you had no background of sickle cell anaemia in your family. In short, sickle cell carrier status was overlooked if you looked hale and hearty – a mistake. Kayongo attended universities in the USA…
The Oyedele Family of Abeokuta, Nigeria, is on the verge of penury as mounting cost of treatment for 10-year-old Oluwatibamise puts pressure on family income. ‘Bamise’, as he is fondly called, was diagnosed with sickle cell anaemia close to his first birthday, and since then has received medical attention at the Federal Medical Centre, Abeokuta.…
The Thalassaemia International Federation (TIF) has introduced a novel approach to health education and created a unique platform for healthcare specialists and patients with thalassaemia and sickle cell disease. The platform is known as TIFLIX (Thalassaemia International Federation LIbrary eXtended). The brand-new video library powered by TIF gathers a wealth of audiovisual content on everything you need to know about thalassaemia and…
As related to Ayoola Olajide, Sickle Cell News Editor, by Nkeirukanma Umeakuekwe, Port Harcourt, Nigeria Nkeiru took her first capsule of Jobelyn early February 2023. She promptly noticed within a few days that she could sit for more time without pain. A few more days, she timed herself and noticed she could sit up five…
HANOVER, Md.—The Sickle Cell Disease Association of America, a national nonprofit membership organization that advocates for people affected by sickle cell, formed the Sickle Cell Disease C.A.R.E.S. Consortium, an initiative of pharmaceutical companies united to promote clinical trial participation and education. “We have an opportunity and a responsibility to change the perception of clinical trials…
By Ijeoma Udeozo BSc Economics & Obiageli Nnodu BMBCH, FWACP, Professor of Hematology & Blood Transfusion, Director, Centre of Excellence for Sickle Cell Disease Research and Training, University of Abuja, (CESRTA) Abuja, Nigeria. Sickle cell disease (SCD) is a major health concern in Nigeria and requires attention from all relevant stakeholders. A recent study was…
An august gathering of representatives of organizations occupying the Sickle Cell Disease/Inherited Blood Disorders space in Nigeria took place at the National Sickle Cell Centre, Idi Araba, Lagos on February 20 2023. The meeting, which held in-person and virtually was one of the many coalition-building meetings of the Global Action Network for Sickle Cell Disease…
At the age of five, a vibrantly healthy child became ill and weak, and her eyes turned yellowish. Doctors quickly diagnosed sickle cell anaemia – it was an open and shut case, even without a telling family history of SCD. There is, however, a grim family history – a sibling of the child passed on…
HANOVER, Md.—The Sickle Cell Disease Association of America will hold its 50th annual national convention virtually this year from Tuesday, Oct. 11, through Saturday, Oct. 15. The five-day multidisciplinary convention addressing sickle cell disease and sickle cell trait draws hundreds of health care professionals, patients, families, community-based organizations, leaders and advocates. The convention this year, “Joining…
