SCDAA Celebrates National Sickle Cell Awareness Month

Conferences, advocacy, blood donations and other events held throughout September

HANOVER, Md.—The Sickle Cell Disease Association of America will participate in National Sickle Cell Awareness Month in September by holding a series of events and supporting the events of member organizations. National Sickle Cell Awareness Month was designated by Congress to focus attention on the need for research and treatment of sickle cell disease.

“Individuals and organizations can join our efforts to bring attention to sickle cell disease by engaging elected officials for proclamations, hosting awareness events and distributing educational information to dispel the myths about sickle cell disease,” said Beverley Francis-Gibson, president and CEO of the Sickle Cell Disease Association of America.

Sickle Cell Disease Awareness: The Unspoken Truth of Women with Sickle Cell Disease will take place virtually Sept. 12 at 4 p.m. EDT. The Sickle Cell Disease Association of America and National Alumnae Association of Spelman College will host the event.  Register online.

The 10th annual Sickle Cell Disease Therapeutics Conference will take place virtually Sept. 15 at 9 a.m. EDT. Hosted by Global Blood Therapeutics Inc. and the Sickle Cell Disease Association of America, the conference provides a forum to discuss the latest advancements and future trends for treating patients with sickle cell disease. Health care companies, opinion leaders, physicians and patients, policymakers and others will present at the conference. Learn more and register online.

A Sickle Cell Awareness Month Twitter Party, an online Twitter conversation hosted by the Sickle Cell Disease Association of America where participants interact, share, learn and celebrate by posting tweets using the hashtag #SickleCellMatters, will take place Sept. 9, 21 and 30 from 12:30 to 1:30 p.m. EDT.  Register online.

Fight sickle cell disease by donating blood—during a nationwide blood shortage caused by COVID—to the American Red Cross. Donors can join the Sickle Cell Disease Association of America’s virtual blood drive. Learn more and pledge online.

Sickle cell groups across the country will hold events for National Sickle Cell Awareness Month throughout September, including town halls, webcasts, walks and races, summits and seminars and fundraisers.  Learn more online.

New educational videos by the Sickle Cell Disease Association of America will highlight the importance of blood donations and share the stories of sickle cell warriors from across the country. Watch online..

The Sickle Cell Disease Association of America invites advocacy organizations, corporate and federal partners and supporters to use the hashtags #SickleCellMatters2021, #SickleCellAwarenessMonth, #SCDAA2021AwarenessMonth and #SCDSCTmatters in social media posts about sickle cell disease throughout September. More information, including a flyer and fact sheet, is available online.

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