Her last post was on June 3rd 2022, when health-conscious sexagenarian Ms Adebola Ayoola Odutola-Benjamin sought to encourage members of her support group to put SCD underfoot by eating principally from nature. Two days later, a pious Christian, she ‘joined the Saints Triumphant’. Born November 18 1958, Ms Benjamin was widely travelled. As Admin Secretary…
SCDAA Mourns Hertz Nazaire (1973-2021) ‘It is with heavy hearts that we share the passing of Hertz Nazaire who passed away October 29 2021 at the age of 48. Hertz was a renowned artist and author who used his painting skills to raise awareness for sickle cell disease. He was also well-known for his SCD…
New website provides centralized place for patients to find and connect to clinical trials The Sickle Cell Disease Association of America launched a sickle cell disease clinical trial finder, a centralized, simple-to-navigate website to help people with sickle cell disease, their families and caregivers find clinical trials. Clinical trials help pharmaceutical companies collect data about…
Conferences, advocacy, blood donations and other events held throughout September HANOVER, Md.—The Sickle Cell Disease Association of America will participate in National Sickle Cell Awareness Month in September by holding a series of events and supporting the events of member organizations. National Sickle Cell Awareness Month was designated by Congress to focus attention on the…
STOP THE SICKLE CYCLE – THE IMPERATIVE OF GENOTYPE AWARENESS By Oluwafemi Ajayi, Founder/CEO, Gail Sickle Initiative GSI As Nigeria tops the list of SCD statistics worldwide, it gives the country a lot of responsibilities in this regard, especially in the area of awareness which is quite a challenge. The widespread ignorance of genotype and…
HANOVER, Md.—Sickle Cell Disease Association of America (SCDAA) named 14-year-old Ayana Lee Johnson the 2021-2023 SCDAA National Teen Ambassador. She was selected through a nationwide competition formerly known as the Poster Child Contest that started in 1976. Her reign will begin with an official coronation during SCDAA’s Annual National Convention Oct. 12-16. In her role…
‘Defenseless and Exposed’ (Sickle Cell Disorder and The Immune System) By David Ajibade MBBS When the Ahmeds – a mother and her four children – first came to one of our Friday free clinics, she told me that, for most of her 16 years of marriage, not a month had gone by without a hospital…
I AM A SURVIVOR can be obtained on several platforms including Konga (paperback), Amazon (soft copy only), Okada bookshop (soft copy), Also at selected bookshops and stores in Nigeria
An international organization, the National Association of Seadogs (Pyrates Confraternity) has a dedicated medical arm which provides free medical services to needy populations around the world. Sickle Cell falls under this spectrum. On several occasions in Lagos, Port Harcourt, Abuja and other Nigerian cities, NAS has conducted or collaborated in SCD awareness campaigns and walks.…
“I am so thankful that I had the opportunity to meet with Lanre – Founder of the Sickle Cell Awareness Group of Ontario – when I was first elected, to learn more about how much of an impact this disease causes for so many people in our communities,” said Khanjin.
