Sickle Cell Disease Association names chief medical officer, board chair HANOVER, Md.—Sickle Cell Disease Association of America named Dr. Lewis Hsu chief medical officer and JaKela Walker chair of the board of directors. Chief Medical Officer Dr. Lewis Hsu is a pediatric hematologist who serves as director of the Sickle Cell Center and professor of…
My daughter is one of the most amazingly bright, resourceful and resilient little girls ever
Her speech and hearing deficits were attributed to the lasting effects of meningitis. Doctors concluded that she needs to use a hearing aid for three months after which – if the aid did not work – she will have to undergo surgery for an estimated N6 million (about $13000).
SCD is a disorder that affects the entire existence i.e physical, mental, emotional and spiritual well being. I felt women need a platform where they can be encouraged, relate with each other and get adequate information for survival – the recipe for a fulfilled life. – Tunrayo Adenle-Oluwole Sickle Cell Warrior, Tunrayo Adenle-Oluwole, 39 was…
On October 10, 2020, the Femi Pinto Sickle Cell Fund (FPSCF) will conduct a 5k Walk around the world to raise awareness about Sickle Cell Disorder. Who was Femi Pinto – and why is the FPSCF doing this? Sickle Cell News speaks with Mrs. Nike Aremu, co-founder, FPSCF. Who established the Femi Pinto Sickle Cell…
By Folorunsho Suleiman PhD, Chief Psychologist, Dept of Psychiatry, Lagos University Teaching Hospital, Nigeria Coronavirus are zoonotic in nature. The disease (COVID-19) is caused by a new strain of corona virus (SARS-Cov-2) that has not been previously identified in humans. The disease (COVID-19) was first reported to the W.H.O on 31st of December, 2019, in…
Love her or loathe her, Aisha Edwards-Maduagwu has written her name in the annals of SCD awareness in Nigeria. In 2015, Sickle Cell News dubbed her a ‘General’ in the SCD trenches in Africa’s largest – and the world’s highest-burdened SCD country. In this interview with Prince Emetanajo, she tells more about championing SCD cause…
Statement by First SCW, Tosin Ola-Weissmann, RN/Masters degree in Nursing, MBA (Health Care Management) I would say that Sickle Cell Warriors refers not just to the patient, but to the family and caregivers as well as those on the front lines fighting for this disease. We can’t fight this battle alone. Yes, not every warrior…
… obnoxious word ‘SICKLER’ begins descent into dustbin of history The word WARRIOR has been gaining traction for some years now. It is even used by officers of the NIH in the US, where in San Diego, Southern California, lives the originator of the word and first Sickle Cell Warrior, Tosin Ola-Weissman. Tosin once went…
I Was Waiting For The Rapture When God Sent Me My Husband
