STOP THE SICKLE CYCLE – THE IMPERATIVE OF GENOTYPE AWARENESS By Oluwafemi Ajayi, Founder/CEO, Gail Sickle Initiative GSI As Nigeria tops the list of SCD statistics worldwide, it gives the country a lot of responsibilities in this regard, especially in the area of awareness which is quite a challenge. The widespread ignorance of genotype and…
HANOVER, Md.—Sickle Cell Disease Association of America (SCDAA) named 14-year-old Ayana Lee Johnson the 2021-2023 SCDAA National Teen Ambassador. She was selected through a nationwide competition formerly known as the Poster Child Contest that started in 1976. Her reign will begin with an official coronation during SCDAA’s Annual National Convention Oct. 12-16. In her role…
‘Defenseless and Exposed’ (Sickle Cell Disorder and The Immune System) By David Ajibade MBBS When the Ahmeds – a mother and her four children – first came to one of our Friday free clinics, she told me that, for most of her 16 years of marriage, not a month had gone by without a hospital…
WARNING: PLEASE DO NOT WATCH THIS VIDEO IF YOU ARE EMOTIONAL https://youtu.be/TaYZ2RCA3p8 Jennifer and Angel are identical twins born 26 years ago with sickle cell anaemia (SCA). Their ordeal started in 2018 when both of them developed ulcers in their arms. Their parents sought for treatment at a private orthopedic hospital in Port Harcourt, and…
I AM A SURVIVOR can be obtained on several platforms including Konga (paperback), Amazon (soft copy only), Okada bookshop (soft copy), Also at selected bookshops and stores in Nigeria
An international organization, the National Association of Seadogs (Pyrates Confraternity) has a dedicated medical arm which provides free medical services to needy populations around the world. Sickle Cell falls under this spectrum. On several occasions in Lagos, Port Harcourt, Abuja and other Nigerian cities, NAS has conducted or collaborated in SCD awareness campaigns and walks.…
“I am so thankful that I had the opportunity to meet with Lanre – Founder of the Sickle Cell Awareness Group of Ontario – when I was first elected, to learn more about how much of an impact this disease causes for so many people in our communities,” said Khanjin.
After receiving chemotherapy for Bone Marrow Transplant at the age of 6; and after receiving yet more chemo to treat an ensuing cancer at 13 … #The doctors said she would NEVER get pregnant ….. #When she got pregnant, they said the pregnancy would ‘come down’ on its own … This is the amazing story…
Kamara and Danny Warner were one unique couple. He was a sickle cell warrior Kamara did not know she had the Sickle Cell Trait when she married Danny. She was 7 years older.. They went on to produce six children, among them three sickle cell warriors. How old were you when you got married? I…
It’s certainly not as if the SCW hasn’t been in dire need of blood several times on her SCD journey. It’s just that she would ‘rather answer the call than take blood’ If a genie could appear to Eberechukwu Mercy Idiaye, 37, and asked to fulfil one wish – just one wish – it will…
