Like the one recently reported for a Bahraini sickle cell warrior, it all started like one of those niggling SCD Crises ….. Sociology graduate Kehinde Salami, Founder/Director/CEO of of the UK-based SCD advocacy, Sicklekan Sickle Cell Foundation, was admitted to hospital with symptoms resembling sickle cell crises. Well. It was day day 3 I was…
THE GREAT ADUKE AND ME, BY MOSUN ADENIJI She re-dedicated her life to Jesus Christ two weeks before she died. Her daughter, Mosun reveals why the nonagenarian asked to be buried the Muslim way. Had multiple organ failure Had a mild stroke Last statement was, ‘Mosun, I want to sleep.’ My mom was a rare…
It was the tradition at the school Oluwayemisi Ajayi attended, Fakunle Comprehensive High School, Osogbo, that most science students aspired to go on to study medicine. ‘It was the same for me – I wanted to be a medical doctor,’ Oluwayemisi says. As fate would have it, she studied Nursing at the School of Nursing…
In previous years, the Sickle Cell Foundation (Nigeria) had trained and certified 30 or more new Genetic Counsellors at a time. This year, by accident or design, the numbers were much lower, just 22 in all, half of whom were nurses, among them, retired nurse and midwife, Mrs. Falilat Funmilayo Salami. As in other parts…
‘I Engaged in every known vice!’ By Titi Aladei Oluwadare Olatunji David, alias Pastore, is a 29-year-old former street hooligan – or, as they are called in Lagos, ‘Area Boy’. Until three years ago, he was neck deep in the trade of hooliganism – rough living, extortion, burglary, etc. Unlike most Area Boys, Pastore lives…
March 2020SCDAA Health Alert The best way to prevent serious illness is to keep from getting infected in the first place. March 17, 2020 – With COVID-19 on the forefront of nearly everyone’s minds, the Medical and Research Advisory Committee (MARAC) at SCDAA wants to provide information to our sickle cell community. Educating yourself about the…
Global Alliance of Sickle Cell Disease Organizations Statement on Coronavirus (COVID-19) SCD is considered an immuno-compromised condition, which makes those living with sickle cell disease more susceptible to infections. Coronavirus (COVID-19) and Sickle Cell Disease (SCD) 1. A brief overview about Coronavirus (COVID-19) Coronavirus (COVID-19) outbreak started in late 2019 and developed into global pandemic…
The 71-year-old sickle cell warrior has never been transfused – plans to live 100 years or more AN INTERVIEW WITH SICKLE CELL WARRIOR EBUN OLUMIDE AKINNINBOSUN EKUNWE, MBBS, MD. MPH At 71, has never received blood transfusion Worst crisis happened when outside Nigeria Local foods such as garri (cassava) can help ease out SCD Feels…
Take Steps to Fortify Yourself! That the dreaded coronavirus is slowly spreading around the world is no longer news. Conditions of immunosuppression make you vulnerable to infections of every sort, including COVID-19! The immunosuppressed include children under 5, the elderly, those with diabetes and hypertension. Others are susceptible being ill with pre-existing conditions. So are…
A LETTER TO FELLOW SICKLE CELL WARRIORS By Aduke Asiata Onikoyi-Laguda, Ilasamaja, Lagos, Nigeria I was always ill as a child; no one knew what was wrong. Some said I was abiku, forsworn to wreck physical, financial and emotional havoc on the family. A drop of rain on my body, and I would lapse into severe…