- Text of Press Release by Dabma Sickle Cell Foundation, Lagos, Nigeria
Having been denied the united objective of imprinting sickle cell disorder awareness in the minds of pedestrians, motorists and the general public, with our loud music blaring on the road, our colourful outfits with leaflets and flyers in our hands showing what sickle cell is from our experiences, and what it is not, as result of the restrictions or the pandemic, it is our good pleasure on behalf of the members of the foundation to issue this press release running through the week.
As the world is making all frantic efforts to arrest the Coronavirus pandemic, (COVID-19), we want to remind the world that sickle cell disorder is and remains an ‘overlooked pandemic’.
From the 15th-19th of June (WSCD), we want to let all readers of our articles and followers on various social media platforms for over a decade, know that you are all distinguished guests, whosoever you are, young or old, and wherever you may be. We appreciate you all. We want to state that Sickle cell disorder (SCD) remains a debilitating disease that has defied science for a cheap and affordable cure.
As the world is making all frantic efforts to arrest the Coronavirus pandemic, (COVID-19), we want to remind the world that sickle cell disorder is and remains an ‘overlooked pandemic’. Many of us as members of the Foundation have lost through the ‘Sickle cell disease pandemic’, promising sons and daughters. As we mark another World Sickle Cell Day, they are no longer there to share with the world, the challenges they faced in their life time with Sickle cell disorder. We must keep standing-in, on their behalf for the living.
Many of us have deep tastes of the disease, and stand better chances to explain to the world how sweet or bitter it has been, and that is the kernel of our press release. Many of our children, brothers and sisters, cousins, nephews, nieces, uncles, fathers, mothers, school mates and close friends were cut short by this pandemic, as a result of the complications of Sickle cell disease, leaving behind them their pet projects. Therefore, we want to state that many of those living with sickle cell disorder seem to be trapped in the ‘lift of life with an unsolicited gift of pain’.
It may not be a death sentence for some, but it has at the same time sentenced some to death. For those that are living with sickle cell disease, they remain in a ‘pain full world’ that can only be described by them. It is a pain that even doctors or nurses or their parents, friends or relations cannot describe, no matter how much they try, with a future of recurring hospital admissions, that they can hardly avoid with various complications, pains and crises.