Early knowledge of genotype – along with its implications – helps children know their sickle cell status long before their reproductive age; in turn, they are empowered to make informed choices and hopefully avoid having children with SCD.
Robinson went on to state how he had used the ‘power of mind’ to bring sickle cell under heel. Quoting John Milton in Paradise Lost, he said – ‘the mind can make a heaven of hell, a hell of heaven.’
For eight consecutive years, stunningly beautiful Zandra Chidinma Nwogu, 35 had been crises-free. All of a sudden, on November 27, 2018, as she prepared for an appointment slated to take place the next day, sickle cell crises erupted. ‘I was cleaning my shoes when I felt this sharp pain course through my neck, spine and…
more funds to flow into research for improved quality of life, cure …. On December 11, 2018, the US Congress passed the bi-partisan Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act of 2018. This legislation authorizes a program within the Centers for Disease Control and Prevention (CDC) that will…
And I looked at the bottle of 75 hydrocodone pills and wished I could just take them all
and not have to live like this.
A day in the life of a laboratory scientist Without an effective laboratory to compliment services, a medical doctor works as if blindfolded. Cognizant of this, the management of Ayokemi Hospital and Ultra Sound Centre lwo Rd., Ibadan runs a well-equipped laboratory to augment the task of delivering quality healthcare to a teeming population in…
I’ve launched a ‘stigma free’ campaign so that those who have been or feel ostracized by society because of their illness know that there is hope and that there are advocates dedicated to fighting for them locally, nationally and internationally.
Living with an invisible illness You look very OK to an observer but feel awful inside By Lady Anne Welsh, UK Having sickle cell has somewhat changed my life. It is hard to explain to someone with no idea of the daily struggles we face. It is an everyday encounter with the pain, the under-the-weather…
Sikul Sel Song – by pupils from a Sierra Leone school In 2017, Dr Maria Berghs, a colleague of Professor Simon Dyson at De Montfort University, went to Sierra Leone in 2017 and got their ‘Guide to School Policy‘ adapted to the local context. (The guide is also available in many other languages). Whilst there…
Season of Honours for Canada’s #1 SCD Activist It all began with trying to immortalize a younger brother and a fallen SCD hero when Lanre Tunji-Ajayi established the Seed Of Life Philanthropic Organization, SOLPO, which later morphed into the Sickle Cell Awareness Group of Ontario (SCAGO). Mrs. Tunji-Ajayi poured all her energy into her project,…