it was a season of honours and accolades for Mrs. Maureen Aisha Edwards, National Coordinator/CEO, APLSCD, Awka. First, the Rotary Club of Agbara, District 9110 Nigeria accorded the tireless SCD advocate a Humanitarian Service Award, part of activities marking the installation of Barrister (Mrs.) Tussy Afam-Obi September 8. Rot Afam-Obi is only the 34th…
The Green Family Story At 19 an accomplished singer and sickle cell disease advocate, AJ Green has accomplished more than most teens his age and doesn’t let his condition keep him from reaching his goals. In addition to performing for two U.S. presidents, Clinton and Obama, Green has shared the stage with Elton John, the…
… But Her Mother Is Uptight and Has Begun A Sickle Cell Advocacy By Amy Schwabe, Milwaukee Journal Sentinel When you meet 2-year-old Evelyn Islam, the first thing you notice is her grin. And her friendliness. And her curiosity. You can’t help but smile as she mischievously steals phones to play with. You…
How a Ghanaian spurred the founding of JB4 By Ayoola Olajide and Fatimah Garba Mohammed Sickle cell pain does not go away all at once after a severe acute episode. A peak is reached from which the patient has to descend, as it were, in slow, uncertain steps. In that penumbra between some…
CAN SEX TRIGGER SCD CRISES? Leah’s ‘UNITED SICKLERS‘ opens a series of real and raw discussions aiming to raise awareness of sickle cell and to get people talking about it. UNITED SICKLERS is a platform for discussing the topic of sickle cell in relation to every day life, tackling controversial subjects which dare to be…
August 23, 2018 Kennedys Village Oh Heavy Day! They Poked My Baby 16 Times to Find A Vein Monday August 29, 2016 We’d just returned home from California. It was our first trip with two kids so I had A LOT to unpack. As I loaded clothes full of California sand into the washing machine,…
How A Strict Vegetarian Diet Restored My Health! SCD Warrior Lea Kilenga I was dependent on morphine, tramadol, pethidine and other opiates. The doctors recommended the removal of my ovaries, uterus and womb – all that made me a woman. Then I turned to a complete vegetarian lifestyle and my health underwent a revolution! I…
Lakiea J Bailey, 39, Executive Director, Sickle Cell Community Consortium, holds a Bachelor of Science in Biochemistry & Molecular Biology as well as a doctorate in Molecular Haematology & Regenerative Medicine. The doctor who loves to read, cook and travel says even though she marries a man with sickle cell, she would rather not…
Pastor With 5 Sickle Cell Children Found Guilty Of Fraud By Abro Onyekwe ….. Sentenced To 2 Years In Prison ….. Counsel Set To Appeal ….. Civil Suit For Hearing October 10 Abel Olukayode Adewale, 58, the Christ Apostolic Church (CAC) pastor renowned for fathering five children with sickle cell was today found guilty of…
Ignorance, Medical Mis-Advice and Fate Lead Pious Family Down The Sickle Cell Road US Evangelist Narseary Williams Harris and her husband, Reverend Harris never knew their genotype and its implications until it was too late … Their experience is memorialised in the book, HOW DO I GO FORWARD WITHOUT YOU? Narseary Harris, as a child,…