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News and Reports

World Sickle Cell Report – Testimonies, Views, Interviews, Reports, Arts ... From Around The World

Interview with Selina Caroline Achieng’ Olwanda, Chairperson, Children’s Sickle Cell Foundation, Kenya

No Reliable SCD Statistics in Kenya Selina Caroline Achieng’ Olwanda, 44 and an MBA in Strategic Management is Chairperson, Kenya Sickle Cell Foundation. In this interview with Titi Aladei, she says there are no reliable figures on SCD statistics in the country. The Children Sickle Cell Foundation – Kenya (CSCF) is an independent not-for-profit community…

46 years with sickle cell – and no blood transfusion!

‘Losing My Hearing To SCD Has Not Dented My Zest For life!’ – interview with a free-thinker warrior and activist, Olutayo Faloye Olutayo Faloye is a 46-year-old Warrior who holds a B.A Linguistics Degree from the Lagos State University (LASU). Asthmatic and sickly as a child, he was diagnosed with SCD (HbSC) at the age…

U.S. Department of HHS and Office of Minority Health Introduce SickleCellStories

SICKLE CELL AWARENESS MONTH CELEBRATIONS To celebrate Sickle Cell Awareness Month, the U.S. Department of Health and Human Services’ Office of Minority Health will be releasing, #SickleCellStories on social media. This video series includes personal stories from patients, advocates, and family members, including a conversation between Assistant Secretary for Health ADM Brett Giroir, MD, and Surgeon General…

Month Of Honours and Donations For APLSCD National Coordinator, Aisha Edwards

  it was a season of honours and accolades for Mrs. Maureen Aisha Edwards, National Coordinator/CEO, APLSCD, Awka. First, the Rotary Club of Agbara, District 9110 Nigeria accorded the tireless SCD advocate a Humanitarian Service Award, part of activities marking the installation of Barrister (Mrs.) Tussy Afam-Obi September 8. Rot Afam-Obi is only the 34th…

He Has Performed for Two US Presidents … At 19, He Has Accomplished More Than Most Teenagers

The Green Family Story At 19 an accomplished singer and sickle cell disease advocate, AJ Green has accomplished more than most teens his age and doesn’t let his condition keep him from reaching his goals. In addition to performing for two U.S. presidents, Clinton and Obama, Green has shared the stage with Elton John, the…

Jenica Leah On SEX and Sickle Cell

CAN SEX TRIGGER SCD CRISES? Leah’s ‘UNITED SICKLERS‘ opens a series of real and raw discussions aiming to raise awareness of sickle cell and to get people talking about it. UNITED SICKLERS is a platform for discussing the topic of sickle cell in relation to every day life, tackling controversial subjects which dare to be…

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