Season of Honours for Canada’s #1 SCD Activist It all began with trying to immortalize a younger brother and a fallen SCD hero when Lanre Tunji-Ajayi established the Seed Of Life Philanthropic Organization, SOLPO, which later morphed into the Sickle Cell Awareness Group of Ontario (SCAGO). Mrs. Tunji-Ajayi poured all her energy into her project,…
Most people dream of having lots of money and some would stop at nothing to make that dream a reality. Having and retaining money requires perseverance, hard work and discipline. One way you can come into lots of money literally without lifting a finger is if someone makes an unintended transfer into your bank account.…
Anne Welsh – My Thorny Road to Super-Achievement When two-year old Anne Welsh first manifested hand and foot swelling – the classical signs of SCD known to doctors as dactylitis – her parents feared she had somehow injured herself. It was in the 1980s and ignorance was still a huge challenge in many homes in…
Jobelyn: A Dramatic Blood-Boosting Phytoceutical From South-West Nigeria The Blessed Virgin Mary (BVM) Hospital,Olodi- Apapa, is located in a high density but economically-backward portion of Nigeria’s economic capital, Lagos. Infections are rife and for those with sickle cell, malaria and typhoid are a constant threat. For folks with SCD, characteristically short of blood, malaria parasites…
Savouring Adelani Ogunrinade’s Treasure Every month – indeed everyday – turns into a sickle cell awareness occasion when you listen to and watch the epic love story, My Treasure, penned by song writer, Adelani Ogunrinade. The former Planet TV host has been indirectly touched by sickle cell through the passing of a childhood friend and…
No Reliable SCD Statistics in Kenya Selina Caroline Achieng’ Olwanda, 44 and an MBA in Strategic Management is Chairperson, Kenya Sickle Cell Foundation. In this interview with Titi Aladei, she says there are no reliable figures on SCD statistics in the country. The Children Sickle Cell Foundation – Kenya (CSCF) is an independent not-for-profit community…
‘Losing My Hearing To SCD Has Not Dented My Zest For life!’ – interview with a free-thinker warrior and activist, Olutayo Faloye Olutayo Faloye is a 46-year-old Warrior who holds a B.A Linguistics Degree from the Lagos State University (LASU). Asthmatic and sickly as a child, he was diagnosed with SCD (HbSC) at the age…
SICKLE CELL AWARENESS MONTH CELEBRATIONS To celebrate Sickle Cell Awareness Month, the U.S. Department of Health and Human Services’ Office of Minority Health will be releasing, #SickleCellStories on social media. This video series includes personal stories from patients, advocates, and family members, including a conversation between Assistant Secretary for Health ADM Brett Giroir, MD, and Surgeon General…
it was a season of honours and accolades for Mrs. Maureen Aisha Edwards, National Coordinator/CEO, APLSCD, Awka. First, the Rotary Club of Agbara, District 9110 Nigeria accorded the tireless SCD advocate a Humanitarian Service Award, part of activities marking the installation of Barrister (Mrs.) Tussy Afam-Obi September 8. Rot Afam-Obi is only the 34th…
The Green Family Story At 19 an accomplished singer and sickle cell disease advocate, AJ Green has accomplished more than most teens his age and doesn’t let his condition keep him from reaching his goals. In addition to performing for two U.S. presidents, Clinton and Obama, Green has shared the stage with Elton John, the…