Category: news

SCAF: Nigeria’s Good Samaritan Foundation

If during the ongoing COVID-19 lockdown and restrictions you did not receive palliative goodies from an organization known as Sickle Cell Aid Foundation (SCAF), you probably don’t mix with your fellow Warriors! In this interview SCAF President, Elmer Aluge, states why the organization has been playing the Good Samaritan in a country where practically every…

Son’s Multiple Strokes Leaves Family Seeking Help

The Oyedele Family of Abeokuta, Nigeria, is on the verge of penury as mounting cost of treatment for 10-year-old Oluwatibamise puts pressure on family income. ‘Bamise’, as he is fondly called, was diagnosed with sickle cell anaemia close to his first birthday, and since then has received medical attention at the Federal Medical Centre, Abeokuta.…

TIF Takes Thalassemia/SCD Education To Next Level

The Thalassaemia International Federation (TIF) has introduced a novel approach to health education and created a unique platform for healthcare specialists and patients with thalassaemia and sickle cell disease. The platform is known as TIFLIX (Thalassaemia International Federation LIbrary eXtended). The brand-new video library powered by TIF gathers a wealth of audiovisual content on everything you need to know about thalassaemia and…

JOBELYN: NEAR-INSTANT RELIEF AFTER 9 YEARS OF MISERY!

As related to Ayoola Olajide, Sickle Cell News Editor, by Nkeirukanma Umeakuekwe, Port Harcourt, Nigeria Nkeiru took her first capsule of Jobelyn early February 2023. She promptly noticed within a few days that she could sit for more time without pain. A few more days, she timed herself and noticed she could sit up five…

Sickle Cell Disease Association of America promotes clinical trials

HANOVER, Md.—The Sickle Cell Disease Association of America, a national nonprofit membership organization that advocates for people affected by sickle cell, formed the Sickle Cell Disease C.A.R.E.S. Consortium, an initiative of pharmaceutical companies united to promote clinical trial participation and education. “We have an opportunity and a responsibility to change the perception of clinical trials…

Improving Care for Sickle Cell Warriors in Nigeria

By Ijeoma Udeozo BSc Economics & Obiageli Nnodu BMBCH, FWACP, Professor of Hematology & Blood Transfusion, Director, Centre of Excellence for Sickle Cell Disease Research and Training, University of Abuja, (CESRTA) Abuja, Nigeria. Sickle cell disease (SCD) is a major health concern in Nigeria and requires attention from all relevant stakeholders. A recent study was…

GANSID Holds Pre-launch Meeting in Nigeria

An august gathering of representatives of organizations occupying the Sickle Cell Disease/Inherited Blood Disorders space in Nigeria took place at the National Sickle Cell Centre, Idi Araba, Lagos on February 20 2023. The meeting, which held in-person and virtually was one of the many coalition-building meetings of the Global Action Network for Sickle Cell Disease…