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Sickle Cell Education Centre

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After Years Of Anguish, Child Conquers SCD By Bone Marrow Transplant

A family’s testimonial of victory over sickle cell … one year after Bone Marrow Transplant Neither parent knew they had sickle cell trait First Transplant at Australian Hospital Smooth-sailing BMT – No spurious side effects experienced As related by mum, Agnes Nsofwa RN MSN, BBA, Co-Founder, Australia Sickle Cell Association (ASCA) Inc On 21st February…

SCSSN, CESRTA SET TO INVESTIGATE HERBAL SOLUTION FOR SCD

Spurred by a Special Report in SICKLE CELL NEWS (vol 13 no 1), the Sickle Cell Support Society of Nigeria (SCSSN) has opened preliminary talks with the Sickle Cell Herbal Solution (SCHS), Lagos. Testimonials on the administration of the herbal potion were featured in the January-March 2020 edition of the magazine, which was made available…

‘The Anambra Sickle Cell Law Is One Of The Best Things To Happen In Nigeria!’ – Samantha Adesua Adaka-Esangbedo

Sociology & Anthropology graduate and Founder, Voice of Adesua Sickle Cell Foundation, Samantha Adesua Adaka-Esangbedo, is on course to becoming a fulfilled sickle cell advocate and campaigner. Diagnosed with sickle cell anaemia as a baby, Adesua, like many living with the genetic condition, has been hospitalized repeatedly and undergone many episodes of acute blood shortages necessitating…

GASCDO, Global Voice for Patients, Families With SCD Set To Begin Work

Volunteers in Administration, Social Media, Finance and Management Wanted … TORONTO, AMSTERDAM, FEBRUARY 6, 2020 After an intensive period of coordination and preparation, the Global Alliance of Sickle Cell Disease Organizations (GASCDO) announced its establishment and the election of the Chair of the Board and President/Chief Executive Officer in Amsterdam on January 10, 2020. We…

‘I was 10 years old when my little brother passed away in my arms’

Founder, JAYJ Foundation can’t ever forget growing up with three brothers having sickle cell … the reason she hopes to see the disorder ERADICATED one day soon Come February 2020, the US-based JAYJ Foundation will flag off a seminal sickle cell awareness campaign and newborn screening program in Haiti. JAYJ is named in memory of…

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