The Bill & Melinda Gates Foundation has donated $1.5 million to Boston Children’s Hospital to develop a gene therapy for sickle cell disease, with the
A Sickle Cell Patient, Miss Onyinye Ezemaduka, has died while being detained at a hospital in Southeast Nigeria for her inability to pay her medical
One of Nigeria’s most active SCD whatsapp platforms, the Pearl Sickle Cell Foundation, is having a presidential candidate for the 2019 General Elections in Nigeria,
more funds to flow into research for improved quality of life, cure …. On December 11, 2018, the US Congress passed the bi-partisan Sickle Cell
And I looked at the bottle of 75 hydrocodone pills and wished I could just take them all
and not have to live like this.
A day in the life of a laboratory scientist Without an effective laboratory to compliment services, a medical doctor works as if blindfolded. Cognizant of
An interesting memoir about the struggles of Carolyn Johnson. This book is obtainable at https://www.amazon.com/Disease-Struggles-Carolyn-Johnson-2015-01-20/dp/B01FKRLBNC/ref=sr_1_2?ie=UTF8&qid=1544209077&sr=8-2&keywords=sickle+cell+and+my+life+struggles
The doctor has never heard of sickle cell anaemia …how did Greg survive this episode of sickle cell crises in a foreign land? Why his
I’ve launched a ‘stigma free’ campaign so that those who have been or feel ostracized by society because of their illness know that there is hope and that there are advocates dedicated to fighting for them locally, nationally and internationally.
Living with an invisible illness You look very OK to an observer but feel awful inside By Lady Anne Welsh, UK Having sickle cell has