The Solutions to Empower Patients (STEP) Program™ continues to help nonprofit organizations deliver new solutions to address unmet patient needs This year’s focus is on addressing some of the most pressing issues in the sickle cell disease (SCD) community Novartis has announced that five nonprofit organizations will receive a total of nearly $250,000 in funding …

Novartis Awards $250k grant to support SCD initiativesRead More »

2019 Theme: A call for universal access to quality thalassaemia healthcare services On May 8, 2019, the global thalassaemia community and the Thalassaemia International Federation (TIF) comes together to celebrate the International Thalassaemia Day. The International Thalassaemia Day is an annual landmark devoted to the strengthening of the lifelong and difficult struggle against thalassaemia, and …

Global Thalassaemia Community, TIF Mark International Thalassaemia Day 2019:Read More »

By Ayoola Olajide and ‘Tosin Fawemida It has been observed that slums arise as a failure of governance. Slum dwellers are often the most neglected, marginalized and underserved citizens of any nation. The living conditions are overcrowded and dismal. Superstition, ignorance, unemployment and illiteracy run rife in the sub-society called Makoko, a sprawling township in …

TunMicro Sickle Cell Foundation Launches Week-long Genotype Sensitization Drive In LagosRead More »

Tayo Faloye, 47, Founder/CEO, Disability & Sickle Cell Organization of Nigeria (DISCON), is on a mission to get SCD officially listed as a Disability within the Disability Laws of Nigeria. What will the benefit of this be? Faloye speaks with Tosin Fawemida SCD Not Strictly a Disability But… Some individuals living with sickle cell have …

Some SCD Complications Should Be Recognized As A Disability – Tayo FaloyeRead More »

In separate donations mid-February 2019 from the Faithmicheal Smile Foundation and the Rotary Club of Awka Smith-town District 9142, the Association of Persons Living with SCD (APLSCD) received bus loads of food items, provisions and gift items. Faithmicheal’s CEO, Ifunanya Chinenye encouraged folks living with SCD to remain steadfast and shun acts capable of undermining …

FaithMichael Smile Foundation, Rotary Club Shower APLSCD With DonationsRead More »

The mission of NEXT STEPS is to shatter limitations and elevate aspirations of teens and young adults living with life-threatening diseases during their transition to adulthood and into an adult healthcare system. The Next Step mission is needed now more than ever as 90% of all youth living with a chronic life-threatening illness are living …

Attend Free Campference For Children With Sickle Cell aged 16-24Read More »

Acute vaso-occlusive pain is associated with the onset of menstruation, and about 25% of the women with sickle cell disease can differentiate these episodes from menstrual-cramp pain, a study found. Findings in the study, “Acute Vaso-Occlusive Pain is Temporally Associated with the Onset of Menstruation in Women with Sickle Cell Disease,” published in the Journal of Women’s Health, supported “our …

Vaso-Occlusive Pain Crises Linked to Menstruation in Some PatientsRead More »

When Gail Campbell Woolley was seven, a pediatrician told her mother that Gail suffered from sickle cell anemia, a rare blood disease, and that she would be dead by age 35. While others may have responded to this horrifying news by descending into a fog of self-pity, Gail went in the opposite direction. She decided …

If you have SCD, you must SOAR like Gail Campbell WoolleyRead More »