Author: sickle cell news

‘The Anambra Sickle Cell Law Is One Of The Best Things To Happen In Nigeria!’ – Samantha Adesua Adaka-Esangbedo

Sociology & Anthropology graduate and Founder, Voice of Adesua Sickle Cell Foundation, Samantha Adesua Adaka-Esangbedo, is on course to becoming a fulfilled sickle cell advocate and campaigner. Diagnosed with sickle cell anaemia as a baby, Adesua, like many living with the genetic condition, has been hospitalized repeatedly and undergone many episodes of acute blood shortages necessitating…

GASCDO, Global Voice for Patients, Families With SCD Set To Begin Work

Volunteers in Administration, Social Media, Finance and Management Wanted … TORONTO, AMSTERDAM, FEBRUARY 6, 2020 After an intensive period of coordination and preparation, the Global Alliance of Sickle Cell Disease Organizations (GASCDO) announced its establishment and the election of the Chair of the Board and President/Chief Executive Officer in Amsterdam on January 10, 2020. We…

‘I was 10 years old when my little brother passed away in my arms’

Come February 2020, the US-based JAYJ Foundation will flag off a seminal sickle cell awareness campaign and newborn screening program in Haiti. JAYJ is named in memory of her three brothers who died from sickle cell complications. Founder/President Valentine Joseph, 50 is herself with the sickle cell trait and has a grownup daughter with HbSC.…

Alliance of Global SCD Organizations Holds Inaugural Meeting

Canadian-Nigerian Lanre Tunji-Ajayi Elected Interim President … Amsterdam, Netherlands, January 2020, An inaugural Face-to-Face meeting of the Global SCD Alliance (#globalSCD) took place in Amsterdam with delegates attending from as far afield as Australia, Bahrain, Canada and the United States. Sickle Cell Disorder is the world’s best-known genetic health condition with no racial or geographical…