For the time in its 47-year history, the Sickle Cell Disease Association of America (SCDAA) has reached out to a media organization in Africa for the purpose of accentuating sickle cell awareness globally. In recent times, the SCDAA has partnered with Emerge Woman Magazine and pharmaceutical giant, Pfizer for the same purpose. The collaboration with …

SCDAA PARTNERS AFRICAN SICKLE CELL NEWS & WORLD REPORT ON GLOBAL SICKLE CELL AWARENESSRead More »

One of Nigeria’s most active SCD whatsapp platforms, the Pearl Sickle Cell Foundation, is having a presidential candidate for the 2019 General Elections in Nigeria, Linguistics Prof. (Mrs.) Funmilayo Adesanya- Davies, on the hot seat this weekend. Prof Adesanya-Davies is seeking to occupy Nigeria’s #1 political office come 2019 on the ticket of the Mass …

Nigeria 2019: Presidential Candidate Hooks Up With SCD Group on WhatsappRead More »

Results from a post hoc analysis of the Phase II SUSTAIN study of crizanlizumab, a humanized anti-P-selectin monoclonal antibody being investigated for the treatment of sickle cell disease (SCD), have been published in the American Journal of Hematology. The analysis showed that more patients treated with crizanlizumab did not experience a vaso-occlusive crisis (VOC) vs …

New Novartis Drug Shows Promise For Vaso-Occlusive CrisisRead More »

Learning To Walk Again @ 21 By ‘Gbolagade Izie   Most with SCD get to know their genotype while still very young. Not Adekunbi Osisami, the youngest in a family of eight. The 53-year old did not know her genotype until she was 16. She was in her fourth year of secondary school when she …

Adekunbi Osisami’s Most Memorable Sickle Cell Crises: ‘At 21, I had to learn how to walk again!’Read More »

Overnight, 500 million people with varying debilitating health conditions in India are set to receive free health insurance, a manna for the poorest of the poor in one of the world’s most populous countries. Indian citizens living below the poverty line will no longer pay for healthcare services at private hospitals. Until now, such treatments …

Modicare – India launches healthcare plan for 500 million citizensRead More »

PETERSBURG — After Hurricane Irma damaged the roof of her Harbordale neighborhood rental home, Laquinda Currie was forced to move her mattress into the living room. Then the ceiling there also threatened to collapse.   In the kitchen, mold behind the stove aggravated her older son’s allergies. When she could take no more, Currie, a …

Habitat For Humanity Restores Hope For Woman With Sickle CellRead More »

SICKLE CELL TRAIT Sickle Cell Trait (SCT): the good, the bad, the deadly SCT not always advantageous or benign SCT: Ugandan SCD activist Ssebandeke Ashiraf has SCT, but it behaves much like SCD SCT: former NFL player James Clarke Ryan nearly knocked out by Sickle Cell Trait, turns activist impatient for a cure! SCT: How …

October-December 2018 Edition – Sickle Cell Trait – the good, the bad, the deadly …Read More »

Sikul Sel Song – by pupils from a Sierra Leone school In 2017, Dr Maria Berghs, a colleague of Professor Simon Dyson at De Montfort University, went to Sierra Leone in 2017 and got their ‘Guide to School Policy‘ adapted to the local context. (The guide is also available in many other languages). Whilst there …

Sikul Sel Song – pupils from a Sierra Leone school set SCD to musicRead More »