The Bill & Melinda Gates Foundation has donated $1.5 million to Boston Children’s Hospital to develop a gene therapy for sickle cell disease, with the goal of making the drug technology more widely available in regions of the world with high rates of the condition. Boston’s Children Hospital has received a $1.5m donation to develop…
A Sickle Cell Patient, Miss Onyinye Ezemaduka, has died while being detained at a hospital in Southeast Nigeria for her inability to pay her medical bills. The sad incident occurred at St Charles Borromeo Hospital Onitsha, Enugu State, where Ezemaduka was prevented from going home unless she fully paid for debts incurred when she was…
more funds to flow into research for improved quality of life, cure …. On December 11, 2018, the US Congress passed the bi-partisan Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act of 2018. This legislation authorizes a program within the Centers for Disease Control and Prevention (CDC) that will…
And I looked at the bottle of 75 hydrocodone pills and wished I could just take them all
and not have to live like this.
A day in the life of a laboratory scientist Without an effective laboratory to compliment services, a medical doctor works as if blindfolded. Cognizant of this, the management of Ayokemi Hospital and Ultra Sound Centre lwo Rd., Ibadan runs a well-equipped laboratory to augment the task of delivering quality healthcare to a teeming population in…
The doctor has never heard of sickle cell anaemia …how did Greg survive this episode of sickle cell crises in a foreign land? Why his father once told him, ‘marry AA or not at all!’ ’Life at the Obafemi University, unconcerned lecturers , concerned friends. On hospital bed, not recognizing caregivers, not knowing whether it…
I’ve launched a ‘stigma free’ campaign so that those who have been or feel ostracized by society because of their illness know that there is hope and that there are advocates dedicated to fighting for them locally, nationally and internationally.
Living with an invisible illness You look very OK to an observer but feel awful inside By Lady Anne Welsh, UK Having sickle cell has somewhat changed my life. It is hard to explain to someone with no idea of the daily struggles we face. It is an everyday encounter with the pain, the under-the-weather…
The National Institutes of Health recently announced the launch of a new initiative to help speed the development of cures for sickle cell disease, a group of inherited blood disorders affecting at least 100,000 people in the United States and 20 million worldwide. The Cure Sickle Cell Initiative will take advantage of the latest genetic…
Djikpo Komlanvi Béni, 31, is président of Afrique Zéro Drépanocytaire’, one of the most active sickle cell pressure groups in the French-speaking West African country of Togo. A masters degree holder and single, he speaks of his passion for sickle cell awareness with Contributing Editor, Ebere Afamefuna. What led you to establish the Togo…