The Bill & Melinda Gates Foundation has donated $1.5 million to Boston Children’s Hospital to develop a gene therapy for sickle cell disease, with the goal of making the drug technology more widely available in regions of the world with high rates of the condition. Boston’s Children Hospital has received a $1.5m donation to develop …

Bill Gates Foundation Donates $1.5m For SCD CureRead More »

A Sickle Cell Patient, Miss Onyinye Ezemaduka, has died while being detained at a hospital in Southeast Nigeria for her inability to pay her medical bills. The sad incident occurred at St Charles Borromeo Hospital Onitsha, Enugu State, where Ezemaduka was prevented from going home unless she fully paid for debts incurred when she was …

Tragedy Of A Poorly-Managed Healthcare System: SCD Patient Detained In Hospital For Inability To Pay DiesRead More »

One of Nigeria’s most active SCD whatsapp platforms, the Pearl Sickle Cell Foundation, is having a presidential candidate for the 2019 General Elections in Nigeria, Linguistics Prof. (Mrs.) Funmilayo Adesanya- Davies, on the hot seat this weekend. Prof Adesanya-Davies is seeking to occupy Nigeria’s #1 political office come 2019 on the ticket of the Mass …

Nigeria 2019: Presidential Candidate Hooks Up With SCD Group on WhatsappRead More »

more funds to flow into research for improved quality of life, cure …. On December 11, 2018, the US Congress passed the bi-partisan Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act of 2018. This legislation authorizes a program within the Centers for Disease Control and Prevention (CDC) that will …

President Trump Signs SCD Treatment Act into LawRead More »

A day in the life of a laboratory scientist Without an effective laboratory to compliment services, a medical doctor works as if blindfolded. Cognizant of this, the management of  Ayokemi Hospital and Ultra Sound Centre lwo Rd., Ibadan runs a well-equipped laboratory to augment the task of delivering quality healthcare to a teeming population in …

He Would Probably Be 72 Years Old Before He Has Another Sickle Cell Crises!Read More »

Living with an invisible illness You look very OK to an observer but feel awful inside By Lady Anne Welsh, UK Having sickle cell has somewhat changed my life. It is hard to explain to someone with no idea of the daily struggles we face. It is an everyday encounter with the pain, the under-the-weather …

Living with an invisible illness: You look very OK to an observer but feel awful insideRead More »