Andy Bako, 58, a laboratory scientist and Executive Director, Bako Youth Development Foundation, resigned from his civil service job to attend full time to sickle cell awareness in his home state, Kaduna. It never occurred to him what a huge problem SCD ignorance was until he put his hat in the ring. ‘I wanted to …

Bako Youth Development Foundation takes genotype verification to one million residentsRead More »

In the spirit of living my best life I started writing this en route to Miami with my oldest childhood friends and I feel like it’s only fitting to share with you the story of my worst crisis (which I experienced while travelling). I can’t even say for sure what it was that caused this …

Blogger Titoluwani relives the series of activities which led her to have her worst crisis everRead More »

Results from a post hoc analysis of the Phase II SUSTAIN study of crizanlizumab, a humanized anti-P-selectin monoclonal antibody being investigated for the treatment of sickle cell disease (SCD), have been published in the American Journal of Hematology. The analysis showed that more patients treated with crizanlizumab did not experience a vaso-occlusive crisis (VOC) vs …

New Novartis Drug Shows Promise For Vaso-Occlusive CrisisRead More »

Nigeria’s Clueless, Clueless Politicians!   By paying scant attention to SCD, politicians in black Africa’s most populous nation display unimaginable cluelessness.   If the statistics are anything to go by, 25 to 30% of the entire Nigerian population of roughly 200 million has sickle cell trait (SCT). This amounts to between 50 and 60 something …

Nigeria 2019: Clueless Politicians Ignore Special ConstituentsRead More »

Learning To Walk Again @ 21 By ‘Gbolagade Izie   Most with SCD get to know their genotype while still very young. Not Adekunbi Osisami, the youngest in a family of eight. The 53-year old did not know her genotype until she was 16. She was in her fourth year of secondary school when she …

Adekunbi Osisami’s Most Memorable Sickle Cell Crises: ‘At 21, I had to learn how to walk again!’Read More »

Overnight, 500 million people with varying debilitating health conditions in India are set to receive free health insurance, a manna for the poorest of the poor in one of the world’s most populous countries. Indian citizens living below the poverty line will no longer pay for healthcare services at private hospitals. Until now, such treatments …

Modicare – India launches healthcare plan for 500 million citizensRead More »

PETERSBURG — After Hurricane Irma damaged the roof of her Harbordale neighborhood rental home, Laquinda Currie was forced to move her mattress into the living room. Then the ceiling there also threatened to collapse.   In the kitchen, mold behind the stove aggravated her older son’s allergies. When she could take no more, Currie, a …

Habitat For Humanity Restores Hope For Woman With Sickle CellRead More »

SICKLE CELL TRAIT Sickle Cell Trait (SCT): the good, the bad, the deadly SCT not always advantageous or benign SCT: Ugandan SCD activist Ssebandeke Ashiraf has SCT, but it behaves much like SCD SCT: former NFL player James Clarke Ryan nearly knocked out by Sickle Cell Trait, turns activist impatient for a cure! SCT: How …

October-December 2018 Edition – Sickle Cell Trait – the good, the bad, the deadly …Read More »